There are only four kinds of people in this world: those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregivers. Caregiving is universal.
According to "Caregiving in the U.S. 2015," the national survey conducted for the National Alliance for Caregiving and the AARP Public Policy Institute, 40 million Americans are providing care for an adult family member or friend, yet few of these identify themselves as caregivers. Often, the things that define being a caregiver, such as helping a parent purchase and organize their medications or taking a friend to their doctor’s appointments, just seems like simply doing what needs to be done when someone needs help.
In simple terms, a caregiver is a person who tends to the needs or concerns of a person with short- or long-term limitations due to illness, injury or disability. The term “family caregiver” describes individuals who care for members of their family of origin, but also refers to those who care for their family of choice. This could be members of their congregation, neighbors or close friends. Family caregivers play a significant role in health care, as they are often the main source of valuable information about the patient.
To understand the importance of a caregiver, think of health care as a three-legged stool. Family caregivers serve as one leg of the stool; professional caregivers (doctors, nurses, etc.) act as another; and the care recipient is the third leg. Without all three legs, health care cannot be as effective as it needs to be.
A family caregiver can be someone caring for a spouse or parent, an extended family member, or even a friend or neighbor. Do you provide someone help with:
If you answered “yes” to any of the examples listed above, you are a caregiver and may benefit from the Called to Care program.
Home care is non-medical assistance with activities of daily living provided in the comfort of a senior’s home. Seniors who are resistant to making the move to a senior living facility, or who need minimal support to maintain their independence, can benefit from the added support of an in-home caregiver. In-home caregivers are sometimes called professional caregivers or private-duty aides. A professional caregiver’s role can include assistance with household and personal tasks as well as support to family members so that a senior can continue living at home as they age. As a senior’s needs increase, in-home care plans can be updated to provide increasing levels of care. Caregivers can also provide supportive services in an independent retirement community or assisted living facility to delay the need for a move to a nursing home for as long as safely possible. Non-medical in-home care providers provide support with basic tasks, offer companionship and provide personal care; personal care aides, companions and private duty aides cannot provide skilled medical services.
There often comes a time when a senior’s personal hygiene declines and they need a more intimate level of care. Family caregivers often draw the line at providing help with bathing or toileting a parent or grandparent. For the comfort and safety of all involved, hiring a personal care aide can ensure professionally trained, high quality care that preserves an aging loved one’s dignity. Adding personal care services to the care plan will include more hands-on assistance.
Personal Care Aide Duties
Home Health Care is prescribed by a physician to treat illness, injury or aid in recovery at home. There is some overlap between home care and home health care; all of the services that a professional caregiver or personal care aide provides can be provided by an in-home care agency, however the medically necessary components of care can only be provided by a licensed home health provider. Companion or personal care services can be added to the skilled care an individual receives if it benefits their overall health and well-being. Home health care services are provided by skilled physical, occupational and speech therapists, registered nurses, CNAs, or home health aides (HHAs) under the supervision of an RN. Most home health care is only provided over a short-term, but it has proven to be highly successful in preventing re-hospitalization and improving quality of life for individuals living with illness or disability.
As parent’s age, their abilities change. It is natural to expect some decline in functioning while what were once previously easy tasks become more challenging. There may come a time, however, when an adult child notices that increased difficulties in managing everyday life are causing risk to a parent’s health and well-being. These warning signs don’t necessarily mean that a parent needs to leave their home, but they may warrant starting the discussion about enlisting some help at home. Whether that be an increased commitment from family caregivers or hiring hourly in-home care, it may be time to intervene if you notice any of the following:
When parents struggle to complete familiar tasks or become confused by their daily routine, it is time to schedule a physical and cognitive assessment. It is always helpful to have a baseline for cognitive and physical functioning at the start of signs of decline. Additionally, there are some treatable conditions that lead to increased confusion or behavior change, like urinary tract infections, depression, and medication interactions that should be ruled out and treated as necessary.
Activities of Daily Living (ADLs)
ADLs are basic tasks required to live independently- most people are used to doing these things in every-day-life regularly and without assistance. Because these tasks are central to independent living, the inability to complete them is a definitive sign that a senior needs some help. To determine the need for assistance at home, doctors, senior care providers and benefit assessors commonly measure the ability to complete 6 specific activities of daily living to figure out how much help is needed. Generally, the need for support with two or three ADLs triggers the start of care, as well as benefits that pay for care services.
Bathing is a measure of an individual's ability to perform basic hygiene tasks like bathing or showering, brushing their teeth, and accomplishing simple grooming such as combing their hair.
Eating is a measure of the ability to properly feed oneself. Using adaptive utensils, straws and scoop dishes can facilitate independently feeding oneself.
Dressing is a measure of the ability to properly dress and undress oneself. Use of adaptive equipment such as button hooks, dressing sticks and velcro is permitted when measuring independence while dressing.
Toileting measures a person's ability to get to and from the toilet and properly clean oneself after voiding.
Mobility measures the ability to sit, stand, and walk independently. Durable medical equipment such as walkers, rollators, canes and wheelchairs can be used to support ambulation, however the individual's ability to transfer from the bed or chair to a walker or wheelchair is then used as the measure of independent functioning.
Continence differs from toileting in that it measures a person's ability to control bladder and bowel functions.
An individual is assessed on a scale that ranges from the ability to accomplish these tasks independently, to being completely dependent on the help of another person in order to complete the activity. Although most assessment tools use a numbered scale, those numbers define how much care assistance an individual requires and are used to inform the care plan.
The inability to manage basic physical needs indicates that a senior is no longer safe on their own, and quality of life is likely diminishing.
There is general consensus on the activities that are included in scales that assess a senior's level of functioning, however a number of different exist for healthcare providers to choose from. The importance of these tools is their ability to provide a standard patient assessment that assists senior care providers in measuring functionality and creating a plan for intervention. Our printable PDF is an example of the information needed to build a thorough care plan for a senior.
Most seniors want to age in place. Nearly 90 percent of seniors express the desire to stay in their own home for as long as possible. Hiring a caregiver to support an older adult offers the assistance they need to remain in their home and community as they age.
Once you have decided to hire a caregiver, use the following questions when meeting with in-home care agencies to ensure that you receive quality assistance.
There are generally three options when paying for in-home care. Medicare, Medicaid, and self-pay, otherwise known as “out of pocket.” The type of care services provided and licensure of the provider determines which method of payment applies.
Any care that is not medical in nature ie. companion care or homemaker services are not covered by Medicare. Medicare only pays for home health care, and only if a recipient meets all of the following requirements:
In an effort to help seniors avoid or delay nursing home care, Medicaid pays for some level of Home and Community Based Services in every state however, the programs and services offered in every state differ. In all states, Medicaid pays for basic home health care and medical equipment. Medicaid may pay for homemaker, personal care, and other services that aren’t paid for by Medicare for those seniors who qualify by both income and functional eligibility rules. Medicaid offers standard state plans, HCBS waivers, and the Community First Choice Option to pay for supportive services that help eligible seniors remain in their homes. To learn more about Medicaid in your state contact your .
Veterans who are signed up for VA health care have a number of options to manage a disability or health condition from home. The VA provides home-based primary care, homemaker/home health aide (HHA) services, hospice care and respite care for family caregivers depending on a Veteran’s personal eligibility and program availability in the geographic area. All veterans are eligible for services at home and in the community, however there must be a demonstrated clinical need in order to qualify for these services. To learn more about paying for long term care with Veterans Benefits visit the US Department of Veterans Affairs page.
Options to self-pay for in-home care (also known as private pay or out of pocket) include the use of personal savings, private health insurance and long-term care insurance. Specific policy details will clarify which skilled vs. non-medical services are covered by personal policies, however long-term care coverage generally only pays a benefit to people who need home health care. Fortunately, many states offer resources to seniors who need support at home. As an elder’s needs increase and personal assets diminish, more assistance programs become available. Developing a plan to pay for long-term care is an important step in preparing for the future. Benefits counselors, care managers, and elder care attorneys with specific knowledge as to the programs available in your state can help a family explore long-term care planning options.
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